friends I am glad the post on category structure etc has led to discussion!  But I'm not currently up for responding to said discussion, both because of low spoons/high pain and because there is other work I need to spend those spoons on while pain allows ( Read more... )

not spec, all too real
hi
-s

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fine thanksI learned too well to say I'm ( Read more... )

I've been asked about how I survived Clarion while ill, and figured it might be of interest to more than just one or two people, so figured a post might be better than email. Also, that maybe other people with CIs could chime in? About Clarion or, even better, about other workshops? Given my limited experience this is going to be a very Clarion- ( Read more... )

The awesome stephanieburgis has important things to say about being on disability. So, passing it on.

Trust me, I do not feel happy about being helpless. NO ONE feels happy about losing their independence. If I ever get disability benefit (which is, by the way, incredibly difficult to get, even for people who are really badly disabled), it'll be much less than ( Read more... )

If you keep something in a place that has cats, or a place in which people smoke, you cannot then send it to me. It could kill me.

Once you've opened the box in that environment, you've let the allergen in. The cat doesn't have to go lick it. The smoker doesn't have to go puff smoke on it. The thing about allergies is that it doesn't take much ( Read more... )

1. tithenai and upstart_crow and I are collaborating on a con_or_bust offer :) Details to follow in another post. Later today, if I can manage ( Read more... )

I didn't actually pay the spoon price for the cupcakes on Thursday -- had a surprisingly full day, didn't crash till 8pm, even got poetry edits in. Nor did I pay yesterday. In fact, yesterday I got hit with a (very) short story & got the rushed-first-draft in before we hung out with elsmi's parents ( Read more... )

It occurs to me that I'm reacting to some things that are utterly invisible to people around me, so I figured saying it out loud might help.

Having a chronic illness doesn't just mean being sick all or most of the time. That's not even been the biggest part of it, most of my life; the biggest part has been being sick while being expected to ( Read more... )

Posted with one comment: trigger warning for people with disabilities and/or chronic illnesses who get too damn much of being treated like we're utterly unimportant & less than human already.

Also, this is slightly condensed because of memory effects; lj ate my first attempt.

( ableism overheard. )

This is mostly so I can keep track m'self, but it's unlocked so that a) people know why I'm such a flakey non-responder these days and b) invisible illness is a little less invisible.

I don't think I have it too bad, as chronic illness sufferers go, but as of now my health situation includes:

Hopefully non-permanent issues:1) Ongoing cough -- ( Read more... )